Publications

Daly, Barbara

Daly, BJ, Hooks, J, Youngner, S, Drew, B. (2000). Thoughts of hastening death among hospice patients and families.   Journal of Clinical Ethics, 11, 56-65.

Daly, B.J. (2000). Special challenges of withholding artificial nutrition and hydration.  J Gerontological Nurs, 26 (9), 25-31.

Lee HS, Brennan PF, Daly BJ. (2001). Relationship of empathy to appraisal, depression, life satisfaction, and physical health in informal caregivers of older adults.  Research in Nursing and Health 24: 44-56.

Douglas, SL, Daly, BJ, Brennan PF, Gordon NH, Uthis P. (2001). Hospital readmission among long-term ventilator patients.  Chest 120: 1278-1286.

Douglas, SL, Daly, BJ, Gordon, N, Brennan, PF. (2002). Survival and quality of life: Short-term vs. long-term ventilator patients.  Crit Care Med, 30: 2655-62.

Daly, BJ, Rosenfeld, K. (2003). Maximizing benefits and minimizing risks in health services research near the end of life.  J Pain & Symp Manag 25 (4): S33-42. 

Douglas SL, Daly BJ.  (2003). Caregivers of long term ventilator patients:  physical and psychological outcomes.  Chest ;123 :1073-1081.

Douglas, SL, & Daly, BJ (2004).  Caregiving and long-term mechanical ventilation.  Chest, 126(4), 1387-1387.

von Gruenigen, VE & Daly, BJ. (2005).  Futility:  Clinical decisions at the End-of-Life in women with ovarian cancer. Gynecologic Oncology 97 (2): 638-644.

Daly, BJ, Douglas SL, Kelley, CG, O’Toole E, Montenegro, HD. (2005) Trial of a disease management program to reduce readmissions of the chronically critically ill.  Chest 128: 507-517.  

Higgins PH, Daly, BJ. (2005). Adult Failure to Thrive in the Older Rehabilitation Patient. Rehabilitation Nursing 30(4):152-9.

Douglas SL, Daly BJ, Kelley CG, O’Toole E, Montenegro H. (2005). Impact of a disease management program upon caregivers of chronically critically ill patients. Chest 128; 3925-3936.

von Gruenigen, VE & Daly, BJ. (2005).  Treating ovarian cancer patients at the end of life: When should we stop? Gynecol Oncology 99: 255-6

Daly, BJ. (2006) .End of life decision making, organ donation, and the critical care nurse.  Critical Care Nurse 26: 78-87.

Higgins PA, Daly BJ, Lipson AR, Guo S. (2006). Assessing nutritional status in chronically critically ill adult patients. Am J Crit Care 15: 166-77.

Daly BJ, Douglas SL, Foley H, Lipson AR, et al. (2006). Psychosocial registry for persons with cancer and their family caregivers: a method for facilitating quality of life and symptom research. Psycho-Oncology 16: 1-7.

Von Gruenigen, VE, Hutchins JR, Reidy AM, Gibbons HE, Daly BJ, Eldemire EM, Fusco NL. (2006). Gynelcologic oncology patients’ satisfaction and symptom severity during palliative chemotherapy. Health and Quality of Life Outcomes, 4: 84

Kelley CG, Lipson AR, Daly BJ, Douglas SL. (2006). Use of advance directives in the chronically critically ill. JONA’s Healthcare, Law, Ethics, and Regulation 8 (2): 42-47.

Hyun I, Griggins C, Weiss M, Robbins D, Robichaud A, Daly B. (2006). When patients do not have a proxy: A procedure for medical decision making when there is no one to speak for the patient. J Clin Ethics 17 (4): 323-330

Lilly, C, Daly, BJ. (2007). The healing power of listening in the ICU. N Engl J Med 356: 513-14.

Douglas SL, Daly BJ, et al. (2007) Chronically critically ill patients: Health-related quality of life and resource use after a disease management intervention. Am J Crit Care 16: 447-457.

DeVita MA, Brooks MM, Zawistowski C, Rudich S, Daly B, Chaitin E. (2008) Donors after cardiac death: Validation of identification criteria (DVIC) study for predictors of rapid death. Am J Transplantation 8: 432-441.

Kloos JA, Daly, BJ. (2008). Effect of family-maintained progress journal on anxiety of families of critically ill patients. Crit Care Nurs Q 31: 96-107.

Kelley, C.G., Daly, B.J., Douglas, S.L., & Standing, T.  (2008).  Racial differences in perceptions held by caregivers of long-term ventilator patients at the end-of-life.  International Journal of Palliative Nursing, 13(1), 30-38.

Prince-Paul MJ, Daly BJ. (2008). Moving beyond the anecdotal: Identifying the need for evidence-based research in hospice and palliative care. Home Healthcare Nurse; 26: 214-219.

Kelley CG, Daly, BJ, Douglas SL. (2008). Advanced Practice Nursing service provision during the last week of life. J Hosp and Pall Nurs 10: 216-223.

Daly, BJ. (2008) An indecent proposal: Withholding cardiopulmonary resuscitation. Am J Crit Care 17: 377-380.

Exline, Julie

Exline, J. J., & Zell, A. L. (in press). Empathy, self-affirmation, and forgiveness: The moderating roles of gender and entitlement. Journal of Social and Clinical Psychology.

Exline, J. J. (in press). Relationships with God. In H. Reis & S. Sprecher (Eds.), Encyclopedia of human relationships. Thousand Oaks, CA: Sage.

Brown, R. P., Wohl, M. J. A., & Exline, J. J. (2008). Taking up offenses: Second-hand forgiveness and identification with targets of transgressions. Personality and Social Psychology Bulletin, 34, 1406-1419.

Exline, J. J., Baumeister, R. F., Zell, A. L., Kraft, A., & Witvliet, C. V. O. (2008). Not so innocent: Does seeing one’s own capability for wrongdoing predict forgiveness? Journal of Personality and Social Psychology, 94, 495-515.

Exline, J. J. (2008). Beliefs about God and forgiveness in a Baptist church sample. Journal of Psychology and Christianity, 27, 131-139.

Wallace, H. M., Exline, J. J., & Baumeister, R. F. (2008). Interpersonal consequences of forgiveness: Does forgiveness deter or encourage repeat offenses? Journal of Experimental Social Psychology, 44, 453-460.

Witvliet, C. V. O., Worthington, E. L., Jr., Root, L. M., Sato, A. F., Ludwig, T. E., & Exline, J. J. (2008). Retributive justice, restorative justice, and forgiveness: A psychophysiological analysis. Journal of Experimental Social Psychology, 44, 10-25.

Exline, J. J., DeShea, L., & Holeman, V. T. (2007). Is apology worth the risk? Predictors, outcomes, and ways to avoid regret. Journal of Social and Clinical Psychology, 26, 479-504.

Exline, J. J., & Yali, A. Y. (2006). Heaven’s gates and hell’s flames: Afterlife beliefs of Catholic and Protestant undergraduates. Research in the Social Scientific Study of Religion, 17, 235-260.

Exline, J. J., Baumeister, R. F., Bushman, B. J., Campbell, W. K., & Finkel, E. J. (2004). Too proud to let go: Narcissistic entitlement as a barrier to forgiveness. Journal of Personality and Social Psychology, 87, 894-912.

Exline, J. J. (2004). Anger toward God: A brief overview of existing research. Psychology of Religion Newsletter, 29(1), 1-8.

Exline, J. J. (2003). Belief in Heaven and Hell among Christians in the United States: Denominational differences and clinical implications. Omega: Journal of Death & Dying, 47, 155-168.

Exline, J. J. Worthington, E. L., Jr., Hill, P., & McCullough, M. E. (2003). Forgiveness and justice: A research agenda for social and personality psychology. Personality and Social Psychology Review, 7, 337-348.

Exline, J. J. (2002). The picture is getting clearer, but is the scope too limited? Three overlooked questions in the psychology of religion. Psychological Inquiry, 13, 245-247.

Higgins, Patricia

Higgins, P. A. & Daly, B. J. (2002). Knowledge and beliefs of nurse researchers about informed consent principles and regulations. Nursing Ethics, 9 (6), 663-671.

Lipson, A.R., Hausman, A, Higgins, P.A. Burant, C. (2004). Knowledge, attitudes and predictors of advance directives discussions of registered nurses. Western Journal of Nursing, 26 (7) 784-796.

Hornick, T., Higgins, P., Dolinar, T., Hayes, K., Kruckemeyer, M., Kumar, G., McIver, E., Pallaki, M., Sims, P.  (2005)  End of life care:  Comparing two approaches.  Federal Practitioner, 22 (8), 8-34.

Higgins, P.A. &  Daly, B.J.  (2005). Adult failure to thrive in the older rehabilitation patient.  Rehabilitation Nursing, 30 (4), 152-159.

Winkelman, C, Higgins, P.A., Chen, Y. J. K. (2005). Activity in the chronically critically ill. Dimensions in Critical Care, 24 (6), 281-290.

Higgins, PA, Daly, BJ, Lipson, AR, Guo, S. (2006). The complexities of nutritional management in chronically critically ill patients. American Journal of Critical Care, 15(2), 166-176.

Lipson, A.R., Kelley, C.G., Higgins, P.A., & Daly, B.J.  (2006).  “My mother’s leaving today?”:  A pilot study on awareness of discharge date in the chronically critically ill. MEDSURG Nursing, 15(1), 8-12.

Hornick TR & Higgins, PA et al. (2006). Initial evaluation of a computer-based medication management tool in the geriatric clinic. American Journal of Geriatric Pharmacotherapy, 4(1), 62-69.

Higgins, PA, Winkelman C, Lipson, AR, Guo, S & Rodgers, J. (2007). Light measurement in the hospital: A comparison of two methods. Research in Nursing and Health, 30, 120-128.

Winkelman, C., Higgins, P., Chen, Y., Levine, A.  (2007). Cytokines in long-term ventilated ICU patients after activity and rest. Biological Research for Nursing, 8, 261-271.

Daly, B.J., Douglas, S.L., Gordon, N.H., Kelley, C.G., O’Toole, E., Montenegro, H., Higgins, P.A. In press, Composite outcomes in the chronically critically ill. American Journal of Critical Care.

McCallum, T.J.

McCallum, T., Spencer, M. & Goins, T. (2008). Lost in summation: Depression among African American female caregivers and noncaregivers. Journal of Cross Cultural Gerontology, (23) 77-84.

McCallum, T., Flynn-Longmire, C. & Knight, B. (2007). Mental and physical health in African American and White women caring for relatives with dementia. The Clinical Gerontologist Vol. 30 (4), 25-37.

McCallum, T., Sorroco, K. & Fristch, T. (2007) Mental health and diurnal cortisol patterns among African American and European American female dementia family caregivers. American Journal of Geriatric Psychiatry. 

Messinger-Rapport, B., McCallum, T., & Hujer, M. (2006). Impact of dementia caregiving on the caregiver in the continuum of care.  Annals of Long-Term Care, 14 (1), 32-50.

Fairrow, A., McCallum, T., & Messinger-Rapport, B. (2004) Preferences of older African Americans for long-term tube feeding at the end of life. Aging & Mental Health, 8, 530-534.

Higgins, A., Coon, D., Solano, N., Kinoshita, L., McCallum, T., D’Andrea, J., & Gallagher-Thompson, D (2002). Behavioral and cognitive interventions for late life depression: Special issues in the treatment of older adults. The Clinical Gerontologist, 7, 57-69.

Prince-Paul, Maryjo

Selected Peer-Reviewed Publications  (Chronological Order)

Daly, B.J., Hooks, J., Youngner, S., Drew, B., & Prince-Paul, M. (2000). Thoughts of hastening death among hospice patients. The Journal of Clinical Ethics 11 (1): 56-65.

Prince-Paul, M., Bartel, J., & Wellman, C. (2003). Methadone use in the older palliative care patient. Journal of Hospice & Palliative Nursing 5 (2): 80.

Schneider, S., Prince-Paul, M., Allen, M., Silverman, P., & Talaba, D. (2004).  Virtual reality as a distraction intervention for women receiving chemotherapy. Oncology Nursing Forum 31 (1): 81-89.

Prince-Paul, M. (2008). Relationships among communicative acts, social well-being, and spiritual well-being on the quality of life at the end of life in cancer patients enrolled in hospice. Journal of Palliative Medicine 11(1): 20-25.

Prince-Paul, M. (2008). Understanding the meaning of social well-being at the end of life. Oncology Nursing Forum 35(3): 365-71.

Prince-Paul, M., Daly, B.J. (2008). Moving Beyond the Anecdotal: Identifying the Need for Evidence-Based Research in Hospice and Palliative Care. Home Healthcare Nurse 26(4):214-9; quiz 220-1.

Prince-Paul, M. (2009). When hospice is the best option: An opportunity to redefine goals. Oncology (Williston Park) Nurse Edition 23(4):12-18.

Prince-Paul, M. & Daly, B. (in press).Ethical Considerations in Palliative Care. In B. Ferrell & N. Coyle (eds.), Textbook of Palliative Care, 3rd ed., Oxford University Press.

Pulchalski, C., Ferrell, B., Virani, R., Otis-Green, S., Baird, P., Bull, J., Chochinov, H., Handzo, G., Nelson-Becker, H.,Prince-Paul, M., Pugliese, K., & Sulmasy, D. (2009). Improving the Quality of Spiritual Care as a Dimension of Palliative Care: The Report of the Consensus Conference. Journal of Palliative Medicine 12(10); 885-904.

Scheufler, J., & Prince-Paul, M. (2011). The Diabetic Hospice Patient: Incorporating Evidence and Medications into Goals of Care. The Journal of Hospice and Palliative Nursing13(6); 356-365.

Ongoing Research Support

1P30NR011907-01 (Daly, PI) 9/30/2009-7/31/2011
Building End-of-Life Science through Positive Human Strengths and Traits (BEST Center)
This interdisciplinary biomedical core focuses on quality of life research for seriously ill people, including those who are at the end of life. The BEST Center is supported by a strong interdisciplinary group of researchers, clinicians, and academic leaders in quality of life of patients with advanced illness and their families. Role:  Co-Investigator

(Prince-Paul, PI)    9/1/2009 – 8/30/2010             
Case Comprehensive Cancer Center-American Cancer Society Pilot Funding
Relational Communication and Quality of Life in Advanced Cancer
The purpose of this study is to examine the influence of the social well being  and spiritual well being on life completion in patients with advanced cancer, while controlling for key influencing variables, and to determine the moderating effect of relationship-affirmation on the association of social well being and spiritual well being with life completion over time.

(Exline, PI)    7/1/2009-6/30/2011
Fetzer Institute
The Role of Forgiveness in End-of-Life Care and Bereavement
The overall goal of this study is to examine the impact of forgiveness among patients at end of life. Specifically, this research project aims to examine forgiveness related issues among family members of hospice patients who are dying and to study these variables within the distinct population of the bereaved family members and friends related to the dying person. Role: Co-Investigator

(Ferrell and Puchalski, Co-PI)   10/1/2008-4/30/2010
Archstone Foundation
Improving the Quality of Spiritual Care as a Dimension of Palliative Care Project
This project builds upon the work of the National Consensus Project (NCP) and the National Quality Forum (NQF), which developed palliative care guidelines and preferred practices. The goal of this project is to further define spiritual care and to identify practical recommendations and resources that will lead to the improved delivery of spiritual practices while providing palliative care. Role: Advisory Committee

Rose, Julia

Rose, J. H., Bowman, K. F., & Kresevic, D. (2000) Nurse versus family caregiver perspectives on hospitalized older patients:  An exploratory study of agreement at admission and discharge.  Health Communication, 12 (1). 63-80.

Rose, J. H., O’Toole, E. E., Dawson, N. V., Thomas, C. Connors, A. F., Wenger, N., Phillips, R. S., Hamel, M. B.,Cohen, H. J., & Lynn, J. (2000).  Age differences in care practices and outcomes for hospitalized patients with cancer.  Journal of the American Geriatrics Society, 48, S25-S32.

Rose, J. H., O’Toole, E. E., Dawson, N. V., Thomas, C., Connors, A. F., Wenger, N., Phillips, R. S., Hamel, M. B., Reding, D. T., Cohen, H. J., Lynn, J. (2000).  Generalists and oncologists show similar care practices and outcomes with hospitalized late stage adult cancer patients.  Medical Care, 38, 1103-1118.

Rose, J. H., O’Toole, E. E., Dawson, N. V., Thomas, C, Lawrence, R. H., Hamel, M. B., Cohen, H. J. (2004).  Perspectives, preferences, care practices and outcomes among older and middle-aged patients with late-stage cancer.  Journal of Clinical Oncology, 22, 4907-4917.

Bowman, K. F., Rose, J. H., Deimling, G. (2005).  Families of long-term cancer survivors: Health maintenance advocacy and practice.  Psycho-Oncology, 14, 1008-1017.

Siminoff, L., Rose, J. H., Zhang, A., Zyzanski, S. (2006).  Measuring discord in treatment decision making: Progress toward development of a cancer communication and decision making assessment tool.  Psycho-Oncology, 15, 528-540.

Bowman, K. F., Rose, J. H., Deimling, G. (2006).  Appraisal of the cancer experience by family members and survivors in long-term survivorship. Psycho-Oncology, 15, 834-845.

Daly, B., Douglas, S., Foley, H., Lipson, A., Liou, C. F., Bowman, K., Kwilosz, D., Koroukian, S., O’Toole, E., Townsend, A., vonGruinigen, V., & Rose, J. H. (2006).  Psychosocial registry for persons with cancer: A method of facilitating quality of life and symptom research.  Psycho-Oncology, DOI:101002/PON.1091.

Smyth, K, Rose, J. H., McClendon, M., & Lambrix, M. (2007).  Influence of caregivers’ characteristics, social support needs and their expectations of computer-mediated support groups.  Journal of Applied Gerontology, 26, 58-77.

Rose, J. H., Bowman, K.F., O’Toole, E., Abbott, K., Love, T. & Dawson, N (2007). Caregiver burden and assessments of patient centered family focused care for frail elderly veterans.  The Gerontologist, 47, 21-33.

Koroukian, S., Beaird, H., Diaz, M., Murray, P., Rose, J. H. (2007).  Complexity of care needs and unstaged cancer in elder: A population-based study.  Cancer Detection and Prevention, 31(3), 199-206.

Rose, J. H., Radziewicz, R., Bowman, K. F., & O’Toole, E. (2008). A coping and communication support intervention tailored to older adults with late-stage cancer.  Clinical Interventions in Aging.  3(1), 77-95.

Weaver, F., Hickey, E., Hughes, S., Parker, Fortunato, D., Rose, J. H. et al., (2008).  Providing All-Inclusive Care for Frail Elderly Veterans: Evaluation of the three models of care. Journal of the American Geriatrics Society, 56, 345-353.

Rose, J. H., O’Toole, E., Einstadter, D., Shenko, C., Love, T., & Dawson, N. (2008).  Patient age, wellbeing, care perspectives and practices in the early treatment phase for late-stage cancer.  Journals of Gerontology A: Medical Sciences, 63, 960-968.

Siminoff, L., Zyzanski, S., Rose, J. H., &Zhang, A.(2008). The cancer communication assessment tool for patients and families (CCAT-PF): A new measure.  Psycho-Oncology, DOI:10.1002/pon.1350.

Bowman, K. F., Rose, J. H., Radziewicz, R., & O’Toole, E. (2009). Family caregivers’ engagement in a coping and communication support intervention tailored to older late-stage cancer patients.  Cancer Nursing, 32(1), 73-81.

Radziewicz, R., Rose, J. H., Bowman, K. F., Berilla, R., O’Toole, E., & Given, B.(in press).  Establishing treatment fidelity in a coping and communication support telephone intervention for aging advanced cancer patients and their family caregivers.  Cancer Nursing.

Stagno, Susan

Stagno SJ, Zhukovsky DS, Walsh TD.  Bioethics: Communication and decision making in advanced disease.  Seminars in Oncology 27:94-100, 2000.

Powaski RD, Palcisco C, Richardson M, Stagno SJ.  Psychosocial care in advanced cancer.  Seminars in Oncology 27:101-108, 2000.

Levine SB, Stagno SJ. Informed Consent for Case Reports and Presentations: The Ethical Dilemma Between Right to Privacy and Pedagogical Freedom.  Journal of Psychotherapy Practice and Research 10:193-201, 2001.