Bibliography

Hearing Impairment and Deafness

Organizations

• American Speech-Language and Hearing Association
  

• Captions On
  

• Cleveland Hearing and Speech Center

• Links in the CHSC site that may be helpful for researchers:

  • 24-hour Sign Language Interpreting

  • Deaf Culture

• Communications Access Realtime Translation (CART) Provider Directory
  

• Communication Service for the Deaf
  

• Deaf Interpreter Services
  

• Hearing Education and Awareness for Rockers (HEAR)
  

• Hearing Loss Association of America (formerly Self Help for Hard of Hearing People, or SHHH)
  

• International Hearing Dogs, Inc.
  

• National Institute on Deafness and Other Communication Disorders: National Institutes of Health

  • Hearing, ear infection, and deafness

  • Research

  • Statistics about hearing, balance, ear infections, and deafness

  • Voice, speech, and language

• Sprint Video Relay Services

Publications

• Agrawal Y, Platz EA, Niparko JK. Risk factors for hearing loss in US adults: data from the National Health and Nutrition Examination Survey, 1999 to 2002. Otol Neurotol. 2009 Feb;30(2):139-45.

• Bainbridge KE, Hoffman HJ, Cowie CC. Diabetes and hearing impairment in the United States: audiometric evidence from the National Health and Nutrition Examination Survey, 1999 to 2004. Ann Intern Med. 2008 Jul 1;149(1):1-10. Epub 2008 Jun 16.
  

• Ciletti L, Flamme GA. Prevalence of hearing impairment by gender and audiometric configuration: results from the National Health and Nutrition Examination Survey (1999-2004) and the Keokuk County Rural Health Study (1994-1998). J Am Acad Audiol. 2008 Oct;19(9):672-85.
  

• Mitchell P, Gopinath B, McMahon CM, Rochtchina E, Wang JJ, Boyages SC, Leeder SR. Relationship of Type 2 diabetes to the prevalence, incidence and progression of age-related hearing loss. Diabet Med. 2009 May;26(5):483-8.
  

• Mitchell TV, Maslin MT. How vision matters for individuals with hearing loss. Int J Audiol. 2007 Sep;46(9):500-11.
  

• Pollard RQ, Dean RK, O'Hearn A, Haynes SL. Adapting health education material for deaf audiences. Rehabil Psychol. 2009 May;54(2):232-8.
  

• Pollard RQ, Barnett S. Health-related vocabulary knowledge among deaf adults. Rehabil Psychol. 2009 May;54(2):182-5.
  

• Scheier DB. Barriers to health care for people with hearing loss: a review of the literature. Journal of the New York State Nurses Association, 2009 Spring-Summer; 40 (1): 4-10.

• Schoenborn CA, Heyman K. Health disparities among adults with hearing loss: United States 2000-2006. 2008. Available here.
  

• Slaven A. Communication and the hearing-impaired patient. Nurs Stand. 2003 Dec 3-9;18(12):39-41.
  

• Sommer SK, Sommer NW. When your patient is hearing impaired. RN. 2002 Dec;65(12):28-32.
  

• Wallhagen MI, Pettengill E, Whiteside M. Sensory impairment in older adults: Part 1: Hearing loss. Am J Nurs. 2006 Oct;106(10):40-8.

Universal Design

Organizations

• CAST: Center for Applied Special Technology. Universal Design for Learning

• Center for Universal Design at North Carolina State University: Products and Environments for All People

• Principles of Universal Design

• Universal Design Resources (links to other UD organizations)

• National Center on Universal Design for Learning (U.S.)

• National Center on Physical Activity and Disability (U.S.)

• National Disability Authority (Ireland). Guidelines for Including People With Disability in Research

• Universal Design Alliance

• Universal Design Education Online
  

Publications

• American Association of Diabetes Educators, Williams A, Bartos B, Chynoweth M, Gerwitz A, Kleinbeck C, Lawson V, Shumaker S, & Sokol-McKay D, Disabilities Position Statement. The Diabetes Educator. 35(1):41-44, 2009. Available here.

• Burgstahler, S. Universal design of instruction. The Faculty Room. University of Washington. Available here.

• Connell BR et al. The principles of universal design. 1997. Available here.

• Mueller JL, Inc. Universal design of products. Available here.

• Myers AR, Andresen EM. Enabling our instruments: accommodation, universal design, and access to participation in research. Arch Phys Med Rehabil 2000 Dec (12 Suppl 2): S5-S9.

• National Institute on Disability and Rehabilitation Research. Resources on Accessible/Universal Design Principles and Performance Measures. 2006. Available here.

• Rose DH, Meyer A. A Practical Reader for Universal Design in Learning. Cambridge MA: Harvard Education Press. 2006.

• Ryan RE, Prictor MJ, McLaughlin KJ, Hill SJ. Audio-visual presentation of information for informed consent for participation in clinical trials. Cochrane Database Syst Rev. 2008 Jan 23;(1):CD003717. Review. PubMed PMID: 18254029.

• Villa RA, Thousand JS, eds. Creating an Inclusive School. 2nd edition. Alexandria, VA: Association for Supervision and Curriculum Development. 2005

• Wilcox SB. Applying universal design to medical devices. Medical Device Consultants, Inc. 2003. Available here.

• Williams A. Universal design in diabetes care: an idea whose time has come. The Diabetes Educator. 2009; 35:45-57.

• Williams A and Moore S. Universal Design of Research: Inclusion of persons with disabilities in mainstream biomedical studies. Science Translational Medicine 3(82): 82cm12. 2011. Available here.

Visual Impairment and Blindness

Organizations

• American Foundation for the Blind

  Links in the AFB site that may be helpful for researchers:

  • AFB Tech (evaluation of products for accessibility)

  • Getting around

  • Glossary of eye conditions

  • Guidelines for Prescription Labeling and Consumer Medication Information for People with Vision Loss

  • Information for professionals

  • Living with diabetes and vision loss

  • Reading and writing

  • Section 508 compliance

  • Specialized services

  • Statistical snapshots

  • Vision simulation video

  • What is low vision?

• American Council of the Blind

Links in the ACB site that may be helpful for researchers:

• ACB/ADP audio description standards

• Braille: History and use of Braille

• Braille transcribers

• Computer products for the blind and visually impaired

• Guide dog schools

• Guide to making documents accessible to people who are blind or visually impaired

• Cleveland Sight Center

  Links in the CSC site that may be helpful for researchers:

  • Communication Access: Braille and Recording Services

  • Computer & Assistive Technology Services

  • Resources

• National Eye Institute: National Institutes of Health

  • National plan for eye and vision research: Low vision and blindness rehabilitation

  • Simulations of visual impairment from eye diseases

  • Statistics and data

• National Federation of the Blind

Links in the NFB site that may be helpful for researchers:

• Information about vision loss for professionals

• Jacobus tenBroek Library (a blindness research library)

• Products and technology

• Resources for Learning

Publications

• Bartos BJ, Cleary ME, Kleinbeck C, Petzinger RA, Sokol-McKay DA, Whittington A, Williams AS. Diabetes and disabilities: assistive tools, services, and information. Diabetes Educ. 2008;34(4):597-8, 600, 603-5 passim.

• Beverley CA, Bath PA, Booth A. Health information needs of visually impaired people: a systematic review of the literature. Health Soc Care Community. 2004 Jan;12(1):1-24. Review. PubMed PMID: 14675361.

• Burton DM, Uslan MM, Blubaugh MV, Clements CW 3rd. Are current insulin pumps accessible to blind and visually impaired people? J Diabetes Sci Technol. 2009 May 1;3(3):613-8. PubMed PMID: 20144301; PubMed Central PMCID: PMC2769864.

• Centers for Disease Control and Prevention. Prevalence of visual impairment and selected eye diseases among persons aged > 50 years with and without diabetes --- United States 2002. 2004. Morbidity and Mortality Weekly Report; 53(45):1069-72.

• Marom L. Insulin pump access issues for visually impaired people with type 1 diabetes. Diabetes Res Clin Pract. 2010 Jul;89(1):e13-5. Epub 2010 May 4. PubMed PMID: 20444517.

• Rosenberg EA, Sperazza LC. The visually impaired patient. Am Fam Physician. 2008;77(10): 1431-6.

• Ryskulova A, Turczyn K, Makuc DM, Cotch MF, Klein RJ, Janiszewski R Self-reported age-related eye diseases and visual impairment in the United States: results of the 2002 national health interview survey. Am J Public Health. 2008 Mar;98(3):454-61.

• Sokol-Mckay D, Buskirk K, Whittaker P. Adaptive low vision and blindness techniques for blood glucose monitoring. Diabetes Educ. 2003;29(4):614-8, 620, 622 passim.

• Uslan MM, Eghtesadi K, Burton D. Accessibility of blood glucose monitoring systems for blind and visually impaired people. Diabetes Technol Ther. 2003;5(3):439-48.

• Whiteside MM, Wallhagen MI, Pettengill E. Sensory impairment in older adults: part 2: vision loss. Am J Nurs. 2006 Nov;106(11):52-61.

• Williams AS. Making diabetes education accessible for people with visual impairment. Diabetes Educ. 2009;35(4):612-21.

• Williams AS. A focus group study of accessibility and related psychosocial needs in diabetes education for people with visual impairment. Diabetes Educ. 2002;28(6); 999-1008.

• Williams AS. Accessible diabetes education materials in low-vision format. Diabetes Educ. 1999;25(5):695-8, 700, 702 passim.

• Wright LS. Training a patient with visual impairment on continuous ambulatory peritoneal dialysis. Nephrol Nurs J. 2005;32(6):675, 677.

Disabilities and Access to Health Care

Publications

• Branigan M, Stewart DE, Tardif GS, Veltman A. Perceptions of primary healthcare services among persons with physical disabilities – part 2: quality issues. MedGenMed. 2001 Apr 6;3(2):19.

• Iezzoni L. Improving health care quality and safety for people with disabilities: an interview with Lisa Iezzoni. Jt Comm J Qual Patient Saf. 2006 Jul;32(7):400-6, 357.

• Iezzoni L.I., O'Day B.L.: More than Ramps. A Guide to Improving Health Care Quality and Access for People with Disabilities.New York City: Oxford University Press, 2006.

• Kirschner KL, Breslin ML, Iezzoni L. Structural impairments that limit access to healthcare for patients with disabilities. JAMA. 2007 Mar 14;297(10):1121-5.

• Kroll T, Jones GC, Kehn M, Neri MT. Barriers and strategies affecting the untilization of primary preventive services for people with physical disabilities: a qualitative inquiry. Health Soc Care Community. 2006 Jul;14(4):284-93.

• Lawthers AG, Pransky GS, Peterson LE, Himmelstein JH. Rethinking quality in the context of persons with disability. Int J Qual Health Care. 2003 Aug;15(4):287-99.

• Morrison EH, George V, Mosqueda L. Primary care for adults with physical disabilities: perceptions from consuimer and provider focus groups. Fam Med. 2008 Oct;40(9):645-51.

• National Council on Disability. The Current State of Health Care for People with Disabilities. Sept 2009. Washington DC: National Council on Disability. Available here.

• Panko Reis J, Breslin ML, Iezzoni L, Kirschner KL. It Takes More than Ramps to Solve the Crisis in Healthcare for People with Disabilities. Chicago: Rehabilitation Institute of Chicago. Sep 2004. Available here.

• Veltman A, Stewart DE, Tardif GS, Branigan M. Perceptions of primary healthcare services among people with physical disabilities – part 1: access issues. MedGenMed. 2001 Apr 6;3(2):18.